I rolled over to face away from the beast beside me, spewing
some foul concoction of stomach acids, last night’s alcohol and weight loss
into the air like a toxic mist. The caretaker-husband who finds me sexiest when
I’m sick; who dutifully sacrifices his sleep to drive me to the hospital for my
daily infusion even though I beg him not to. Now that I am no longer stoned on
oxycodone I might not be able to wash my hair efficiently, but I’m certain I
could drive the car! He insisted. I capitulated. He complained. I was careful not
to wake the beast as I rolled; careful not to disturb the IV in my left arm;
careful not to wake up the pain that had taken up residence in my right arm
like a guest that stayed too long at a Holiday Inn. The unwanted guest was the
reason for the left arm’s inaccessibility. Why didn’t they drip the antibiotics
directly into the infected arm? Perhaps
they couldn’t find a vein in that swollen mass. Perhaps a needle couldn’t
penetrate the skin, taut and tough from the heat and stretching. Perhaps they
simply didn’t want to touch it fearing my reaction should an errant poke
release a bolt of pain that would course through my body and delay the
procedure as they tried to peel me off the ceiling, or the floor, more likely, I
thought, remembering the prodding fingers of the physician’s assistant at the
orthopedist who incorrectly diagnosed tendonitis and sent me home with
instructions to call if it got hot or red. That took a few hours. By then, all
the people who could help had left for the weekend, leaving instead a list of
Doctors-On-Call whose only advice was to call someone else or spend another day
in the emergency room taking every test imaginable and then being sent home
with a broad spectrum antibiotic and list of follow-up doctors. And pain meds.
Blessed pain meds. Isn’t that how I got here in the first place? Never listen
to a P.A.! There was the P.A. in Westport years ago who told me that my six-year-old
son had masses in his legs and we should watch them for a few weeks to see if
they grew, until the Doctor came in a suggested these worried parents might
like to know TODAY if their son had cancer. This P.A. knowingly pressed the
most painful spots around my elbow until I came to one that made my body feel
as if it had been opened at the soles allowing my innards to rush out on a wave
of white light and greenish-yellow nausea.
There was the P.A. at the emergency room a few weeks ago who tested me for
everything, found nothing but a mysteriously high white blood cell count, gave
a diagnosis of a mysteriously high white blood cell count, and sent me home
with the list of doctors, two prescriptions and a “Feel better. Don’t know
what’s wrong with you but we hope it will go away soon.” Really? Is this what
the medical profession has become? Is this how it has always been? A guessing
game? Guess right and win a car, or the monetary equivalent. These days,
doctors don’t even have to guess right to win. They just keep guessing. And we
keep coming back! I remember as a child, the doctor would sit on the edge of my
bed as he examined me in my room, my mother looking concerned in the corner.
He’d make jokes to relax me and slap my bottom to lessen the sting of the
injection in my backside and then he and my mother would have coffee at the kitchen
table as he assured me I’d be up and about in a day or two. And I would be!
Now, four months, three rounds of steroids, every cillin, cephalosporin and now
mycin has entered my body and still no one knows what’s wrong. It’s still a
mystery. Do I feel better? I want Dr. House. I want my Daddy.
Wednesday, May 8, 2013
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